Nemaline Myopathy
What the heck is the above?
i finally got the report from my biopsy done 5 years ago. i guess the doc could tell tt i wasn't very happy tt i was unceremoniously discharged from the clinic, with no idea of what had (in my case, had NOT been) established. n that was after how tings were blown so out of prop tt my parents thot tt any minute i wld b ending up in a wheelchair?
i must hv u guys analyse wat the report says, i.e. put it into layman terms for me. i can't make sense of the report, other than for the key words, like 'inconclusive', 'no evidence', 'not possible to confirm'.
sheesh, any minute now, i would start embarking on a hate campaign against docs. it's precisely y we dun noe, which is y we have approached the 'professionals'. at the very least, these purported professionals can cum up with a report to present to the patient and family, so tt we would not b at a loose end over here. in this respect, i seriously tink S'pore docs shld buck up. n i completely agree with the article in Sunday Times about docs being insensitive.
how does it feel like to b told over the fone, 'we found sth abnormal in yr blood. u hv to cum in ASAP!'. even the most confident and steadfast of man will panic at tis. for another e.g., my uncle (who had since passed away) was told pointblank tt he had cancer n he would not survive more than 3 mths.
HELLO? we r humans here...i noe docs hv targets to mit, endless patients to c, but it wun harm anyone to b alittle bit more humane in breaking the news?
i hv since cum to tis conclusion: we must b very confident of ourselves and hv faith in our bodies. once we succumb to the worst case scenario as depicted by the docs, we would start worrying incessantly n tt's no way to live a life. confidence once shaken is hard to rebuild, n i m happy to say tt hving learnt my lesson from 5 yrs ago, i prepared myself mentally b4 walking in the doors of the clinic todae.
i asked smart qns, nor did i waver at his qns. at the end of the visit, he had not told me anything tt i didn't noe. wat i did gain was the report tt they owed me 5 yrs back!
though he has not yet written the reply letter to the official medical provider, i believe tt all's fine. My condition has not deteroriated from 5 years ago, if u believe wat the doc said. my new job shld b safe n in the bag.
in other news, i am informed tt i shld b joining the workplace of where aki's bf is currently on attachment at. (yah, i noe i spelt out in a not-too-direct manner, but i didn't want to spell tings out tt clearly...just in case.)
i finally got the report from my biopsy done 5 years ago. i guess the doc could tell tt i wasn't very happy tt i was unceremoniously discharged from the clinic, with no idea of what had (in my case, had NOT been) established. n that was after how tings were blown so out of prop tt my parents thot tt any minute i wld b ending up in a wheelchair?
i must hv u guys analyse wat the report says, i.e. put it into layman terms for me. i can't make sense of the report, other than for the key words, like 'inconclusive', 'no evidence', 'not possible to confirm'.
sheesh, any minute now, i would start embarking on a hate campaign against docs. it's precisely y we dun noe, which is y we have approached the 'professionals'. at the very least, these purported professionals can cum up with a report to present to the patient and family, so tt we would not b at a loose end over here. in this respect, i seriously tink S'pore docs shld buck up. n i completely agree with the article in Sunday Times about docs being insensitive.
how does it feel like to b told over the fone, 'we found sth abnormal in yr blood. u hv to cum in ASAP!'. even the most confident and steadfast of man will panic at tis. for another e.g., my uncle (who had since passed away) was told pointblank tt he had cancer n he would not survive more than 3 mths.
HELLO? we r humans here...i noe docs hv targets to mit, endless patients to c, but it wun harm anyone to b alittle bit more humane in breaking the news?
i hv since cum to tis conclusion: we must b very confident of ourselves and hv faith in our bodies. once we succumb to the worst case scenario as depicted by the docs, we would start worrying incessantly n tt's no way to live a life. confidence once shaken is hard to rebuild, n i m happy to say tt hving learnt my lesson from 5 yrs ago, i prepared myself mentally b4 walking in the doors of the clinic todae.
i asked smart qns, nor did i waver at his qns. at the end of the visit, he had not told me anything tt i didn't noe. wat i did gain was the report tt they owed me 5 yrs back!
though he has not yet written the reply letter to the official medical provider, i believe tt all's fine. My condition has not deteroriated from 5 years ago, if u believe wat the doc said. my new job shld b safe n in the bag.
in other news, i am informed tt i shld b joining the workplace of where aki's bf is currently on attachment at. (yah, i noe i spelt out in a not-too-direct manner, but i didn't want to spell tings out tt clearly...just in case.)
posted by Belief in Life @ 6:02 pm
2 Comments:
cheem title. i only know myo= muscle so myopathy = something wrong w muscles which u already know. agree that docs these days are not up to std. they tend to dismiss patients without fully explaining anything. i was pri 3 when the doc told me that i didn't have heart murmur. so did that mean that the 1st doc who said that i did made a mistake? will always remember what happened to my dad and shu e's dad and prozac's appendicitis incident. =P
anyway, darn... was hoping u come to my dept then we can all lunch together.
"nemaline myopathy"...wat the?
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